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Rebecca NahidParticipant
Tried the mousse very decadent and delicious! Only critique was a bit grainy think the melted choc was not cooled down enough. However still lovely but high in calrories. Apparently adding cocoa powder instead will not work but great for a dinner party! Have added it to my recipe page on facebook
Rebecca NahidParticipantThank you makes a lot of sense! I also like the NHS sites. One site my doctor told me about advised ice packs for gout though. Mabe work for some but never again!
Rebecca NahidParticipantIts a relatively new discovery and goodness knows who thought of it! There are lots of recipes out there I would love to try meringue with it. It can also be used in mayo and dressings. It must be just plain water not salted I used Asda organic can and think Waitrose do unsalted. I made a choc mousse letting it set overnight but tastes lively as i was making it. I whisked the water left over from a can. It took 15 mins with a hand whisker but stand whisker would be quicker. I could not reach the fully desired consistency as in you can turn bowl upside down. Not sure if hot kitchen or crap whisker lol. Before this I melted 140g dark chocolate and allowed to go cold. This chocolate ha sugar added if u used bitter chic u could add sugar but not sure if would affect the mixture. Fold in the dark choc dont worry if mixture goes runny, then put in fridge.
I worked out it was 120ml water but your maths was way over my head as maths is not my stong point. I made 2 portions so basically galf a can of chickpea water. I was weary because my last attack came the next day after having consumed a large portion of home made hummus but could be coincidence! I have am glad what you said about allopurunol taking away the food worry life without hummus would be unbearable!
Rebecca NahidParticipantThank you that sounds great. I did think my uric acid was already getting really low and at 2.7 you would think it fully under control but maybe it is not low enough. I am hopefully towards the final stages of latest attack. Thinking it would be wise to wait till next week, give it a few more days and then start on 300mg dose? Carrying on with 100mg this week.
Rebecca NahidParticipantWhen you say my doctor has no cluecwhat do you mean? She is not a very old doctor in her warly 40s but she does seem very clued up on gout. I feel really confused now. Why xan’t I just follow her instructions initially and take 300mg daily (as Keith you do not seem to regard higher doses of allopurinol a problem rather a benefit). I have excellent liver and kidney function surely if I did get side effects I could then suggest taking 300mg on alternate days? From what I have understood on here the 300mg will break up old uric acid crysrals and perhaps 100mg was too low a starting point. I presumed the highr dose, as she said herself, would be a good step in the direction of really attempting to knock this gout on the head and regain my lufe back. She is quite a forthright woman I don’t see the point in lowering the dose, going against what she has advised. Sorry if I come across whiny here but I was feeling generally positive about increasing to 300mg now it seems like its really controversial!
Rebecca NahidParticipantThank you Keith Taylor I will stick with what I wear then. The doctor has reassured me and I like to believe her that my gout will be under control and there will be a day hopefully soon when I am not obsessing over footwear and food! I long for the gout free days when I could slip on a cheap but sturdy pair of trainers, go for a long walk come home and eat a tub of hummus! Not worrying about footwear or chickpeas purine content!
Rebecca NahidParticipantThing is she is only goint to prescribe me 300mg and the tablets cant be broken in half I don’t think. It is a catch 22 situation if I go my own way and things go wrong as a doctor she will say I told you so. If I follow her instructions the onus is on her which I as a patient/a worrier do prefer as then if I get side effects she will have to put me back to 100mg
It is so hard!
Rebecca NahidParticipantThank you Keith Taylor sorry I didn’t see you had replied till now. I have requested a gout diwt plan but as you say I am focussing too much on food.
With the shoes/exercise thing. My last gout attack was 4 years ago during a really hot spell and I had been stupidly wearing fashion shoes with tight toe area. Since then in the last 4 years gout free I found the most comfortable orthapefic sandals with velcro fastenings round the toe (ideal with my bunions as can adjust them when my foot hurts. Plus brilliant trainers and slightly wider fitting boots all of which I have qalked in with no issues so would it not make sense to carry on wearing these? If in the past I have bought different shoes and have not got on with them i am unable to get refunds. I saw a physio and podiatrist and she said my footwear was perfect.
Rebecca NahidParticipantYes that is true about the rheunatologist its a lot of money. I have had xrays that just show deterioration around the joint perhaps due to the repeated attacks?
The doctor said the next dose up is 300mg what problems could it cause cos thats got me worried now? She seems to think it will not cause me any issues. How does low uric acid affect metabolism?
Rebecca NahidParticipantAlso she said I should take Allopurinol at night but I have always taken it in the morning with breakfast with no issues. I askex my pharmacist and they said it does not matter when I take them! Wish doctors would stop confusing me
Rebecca NahidParticipantOh okay thank you just checking in case I use any unfamiliar terms on hete. Woke up in agony all swollen and red at joint. Saw my doctor she is putting me on 300mg. She says 100mg starting dose probably wasn’t high enough. I can use up my existing tablets. She said she was not worried about increasing my dose as my blood test results showed my liver and kidneys working brilliantly.
One thing did annoy me. She said I should stop taking Allopurinol during an attack but previous doctors said “no never stop it” she then looked it up on her computer and it said carry on taking it which I think annoyed her a bit! I will carry on the allopurinol but only at the 100mg til the attack subsides then start on 300mg does that sound ok?
I asked about seeing a rheumatologist and she said there would be no point. I am looking down the line at bunion surgety but she said it would be foolish to touch that area now as could make matters worse!
Rebecca NahidParticipantI am also vegan I doubt it was Veganaise as I eat that every day
I did have pain after sweetcorn soup but I thought sweetcorn was low-medium purine?Rebecca NahidParticipantYes thats true. They say that gout does go away untreated eventually but I would rather speed the process up and get back to normal so a few days off my feet is a small sacrifice I guess. I think I am quite susceptible to side effects on pills, both Colchicine and Diclofenac affect my sleep. I find it really difficult to walk with crutches so when I do walk short distances I tend to walk on the side of my foot. Are you based in the UK by the way?
Rebecca NahidParticipantThanks I will mention that to my doctor then when I see her. Just out of interest what high doses are some people on? I have heard of people taking 800mg and just would love to know if it brings any side effects? Woke up today and although the joint is not that swollen/red/hot still feels uncomfortable.
This brings me to another question (I hope you don’t mind all these questions) how much do you stay off your feet during an attack? I know when I get the first stages of an attack, as in early hours of the morning, absolute agony, I can barely put my foot down on the floor when I get out of bed, so I tend to sit with my foot elevate for a good 24 hours until the pills start to kick in. But now that I am not in agony do you think its okay to do light housework, vacuuming, cooking etc..and even going to the shops, walking short distances? I find most of it depends on whether I can actually get footwear on, when its really bad I can’t even put my foot into a slipper. Luckily I have some brilliant velcro sandals that are ideal for gout.
Rebecca NahidParticipantThank you again. With regards dairy I am vegan for ethical reasons so would not go back to dairy also I previously had estrogen postive breast cancer so avoid it due to its estrogenic properties. What actually is it in dairy that protects though? Are you talking about calcium? If so I do take multi-vits and also have non-dairy milk and yoghurt which has been fortified. Plus eat a lot of leafy green veg, tofu and other sources of calcium. I know all my levels are fine on that score as get my blood tests every 4-6 months. Luckily all is okay with my liver so doctor wants to keep me on the 100mg low dose that I am on just in the meantime.
Rebecca NahidParticipantHello thank you for replying! My uric acid levels were just below the borferline so the doctor did say although it is better it still puts me in the danger zone. So what you say makes sense. She said it could take up to a year for them to stop.
My feet go really cold at night during winter almost icy. I have to avoid really hot baths as have noticed just after a hot bath or while in the hot sun my toes on both feet go very red and puff up. I am so cross as woke up today and the swelling had gone down so thought I was getting better. Had a stir fry at lunch with beansprouts and an hour after my foot is red and swollen again. Surely food cannot act that fast and I thought vegetable purines were different. I am vegan and do not drink alcohol its baffling why I get it. For information I believe my first attack 14 years ago was due to being on Atkins plan and drinking red wine.
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